"Nine years ago, our lives changed forever when Ishmeet came into our world. For nine months, I carried him in my womb, dreaming of the day I would hold him in my arms. That day finally came, and I felt like the happiest mother on earth," - says Priya, mother of Ishmeet.
Ishmeet is more than just our son, he is our everything. Since his arrival, our lives have been filled with love, laughter, and unforgettable memories. But now, each passing day brings in a different emotion of fear and hope intertwined.
Five years ago, our world was turned upside down when Ishmeet was diagnosed with Duchenne Muscular Dystrophy (DMD)—a cruel genetic disorder that gradually weakens the muscles. Until then, we had no idea this condition was silently robbing him of his strength. Since the diagnosis, my husband and I have been hoping, praying, and searching for a cure.
"I wake up every morning praying for a miracle. Watching my child lose his ability to move freely is a pain no parent should endure." - Ishmeet’s father.
“I am a soldier in the Indian Army, but today I stand here as a father carrying hope that one day my 9-year-old son Ishmeet will one day live a normal life since he is slowly losing his strength to Duchenne Muscular Dystrophy.
Every day, I watch him try to do the simplest things and every day, it becomes harder for him. Ishmeet still smiles, still dreams, but I can see the struggle behind it. There is nothing more painful than feeling helpless watching your child suffer.
The only hope to slow down this disease is Elevidys Gene Therapy, a treatment with a huge cost. Please… help me save my young son.” - Harpreet Singh, father.
DMD has taken so much from him already. Ishmeet is now on steroids and undergoes physiotherapy regularly. Ishmeet has leg pain; therefore, he compromises a lot on physical activities. Playing cricket is his favourite hobby, but he can't do any of it right now due to the progression of muscle weakness.
Currently, Ishmeet is in 2nd standard, attending school, and appearing for his exams.
"Mumma, I also want to become an army man like my father," says Ishmeet to his mother.
Doctors at AIIMS, Delhi, have recommended Elevidys Gene Therapy, a one-time intravenous infusion that delivers a shortened version of the dystrophin gene (micro-dystrophin) into his muscle cells. This therapy can help prevent further muscle degeneration and give Ishmeet a chance at a better life.
But this treatment comes at an unimaginable cost, several crores. As parents, we want to give our son everything, but this amount is beyond anything we could ever think of affording.
"We want one thing for our son. May Ishmeet have a chance to run, to play, and to smile without limitations. We cannot do this without your help." - Ishmeet’s parents.
Why Should You Help?
Ishmeet’s life is precious. Every donation brings Ishmeet closer to a future filled with hope and possibilities. With your kindness, we can give our son a chance to live without the constant shadow of this disorder.
How Can You Help?
- Donate for Ishmeet’s treatment on ImpactGuru.
- Share his story widely to spread awareness and get more support.
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ਤੁਹਾਨੂੰ ਮਦਦ ਕਿਉਂ ਕਰਨੀ ਚਾਹੀਦੀ ਹੈ?
ਇਸ਼ਮੀਤ ਦੀ ਜਾਨ ਕੀਮਤੀ ਹੈ। ਹਰ ਦਾਨ ਇਸ਼ਮੀਤ ਨੂੰ ਉਮੀਦ ਅਤੇ ਸੰਭਾਵਨਾਵਾਂ ਨਾਲ ਭਰੇ ਭਵਿੱਖ ਦੇ ਨੇੜੇ ਲਿਆਉਂਦਾ ਹੈ। ਤੁਹਾਡੀ ਦਿਆਲਤਾ ਨਾਲ ਅਸੀਂ ਆਪਣੇ ਪੁੱਤਰ ਨੂੰ ਇਸ ਬਿਮਾਰੀ ਦੇ ਲਗਾਤਾਰ ਪਰਛਾਵੇਂ ਤੋਂ ਬਿਨਾਂ ਰਹਿਣ ਦਾ ਮੌਕਾ ਦੇ ਸਕਦੇ ਹਾਂ।
ਤੁਸੀਂ ਕਿਵੇਂ ਮਦਦ ਕਰ ਸਕਦੇ ਹੋ?
ਇਮਪੈਕਟਗੁਰੂ 'ਤੇ ਇਸ਼ਮੀਤ ਦੇ ਇਲਾਜ ਲਈ ਦਾਨ ਕਰੋ।
ਜਾਗਰੂਕਤਾ ਫੈਲਾਉਣ ਅਤੇ ਹੋਰ ਸਮਰਥਨ ਪ੍ਰਾਪਤ ਕਰਨ ਲਈ ਉਸਦੀ ਕਹਾਣੀ ਨੂੰ ਵਿਆਪਕ ਤੌਰ 'ਤੇ ਸਾਂਝਾ ਕਰੋ।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.