"Every morning I wake up hoping today isn't the day SMA steals a little more of my baby's strength." - Alok Kumar Singh, father.
I never imagined that the happiest chapter of our life would so quickly become the most worrisome one.
When Reyansh was born, I held him in my arms and dreamed about everything we would do together. I imagined teaching him to walk, watching him take his first steps, hearing him call me "Papa," and cheering him on as he grew into the person he was meant to become.
Today, those dreams are hanging by a thread. My son is struggling for every next breath!
At just three months old, Reyansh has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic disease that slowly destroys the muscles a baby needs to move, swallow, and even breathe. Every passing day, it quietly steals a little more of his strength.
Watching my tiny son struggle for something as simple as breathing is a pain no parent should ever experience.
Doctors have started him on Risdiplam to support him for now, but they have made one thing very clear, his best chance at a better future is Zolgensma gene therapy. The treatment costs nearly ₹16 crore, an amount far beyond reach.
“Instead of celebrating milestones, I check to see if my son is still breathing.” - Nidhi Singh, mother.
My wife has devoted every moment to caring for Reyansh while I do everything I can to keep hope alive. We have already spent over ₹5 lakh from our savings on tests, medicines, and hospital visits, but we have reached a point where love alone is no longer enough.
The next few weeks are incredibly important. Doctors believe receiving the treatment as early as possible can make a life-changing difference. The treatment exists but as time slips so does my son’s strength to move, breathe or soon even swallow.
Your contribution is the blessing we seek to save our little angel, Reyansh. Will you lend a helping hand to save his precious life? Donate and share his story. One act of kindness could become the reason he gets a chance to grow up!
How can you help him?
Donate to his treatment.
By donating, you help ensure that he receives the treatment that saves his life.
Share his story with your family and friends.
By sharing his story with your loved ones and friends, you will help to amplify his voice to those who care and are willing to donate.
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SMA रेयांश की मांसपेशियों को कमज़ोर कर रहा है, जिससे उसे हिलने-डुलने और साँस लेने में मुश्किल हो रही है।
डॉक्टरों के पास रेयांश को ज़ोलजेन्स्मा (Zolgensma) से ठीक होने का सबसे अच्छा मौका देने के लिए 45-50 दिनों का अहम समय है।
सिर्फ़ 3 महीने की उम्र में, रेयांश एक ऐसी बीमारी से लड़ रहा है जो उसके हिलने-डुलने, कुछ निगलने और साँस लेने की क्षमता पर असर डाल सकती है।
आपकी दरियादिली एक अनमोल जान बचा सकती है! हर दान मायने रखता है।
आप उसकी मदद कैसे कर सकते हैं?
उसके इलाज के लिए दान करें।
दान करके, आप यह पक्का करने में मदद करते हैं कि उसे वह इलाज मिले जिससे उसकी जान बच सके।
उसकी कहानी अपने परिवार और दोस्तों के साथ शेयर करें।
अपने करीबियों और दोस्तों के साथ उसकी कहानी शेयर करके, आप उसकी आवाज़ उन लोगों तक पहुँचाने में मदद करेंगे जो परवाह करते हैं और दान करने के इच्छुक हैं।
The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.