Crowdfunding

We have a gift for your kindness!

Claim Gift
LIVE


Support Baby Ojas

A rare genetic disorder has turned my baby's life into a fight for survival

A rare genetic disorder has turned my baby's life into a fight for survival

PK
Campaigner Details
Impactguru Verified

Pitambar Khannal
Kathmandu Nepal Contact
BO
Beneficiary Details
Impactguru Verified

Baby Ojas
Child of Pitambar Khannal
Patient Hospitalised at
Sir Ganga Ram Hospital, Old Rajinder Nagar, New Delhi , Delhi

of $ 21,858

26 Donors
Every social media share can bring $80
PK
Campaigner Details
Impactguru Verified

Pitambar Khannal
Kathmandu Nepal | Contact
BO
Beneficiary Details
Impactguru Verified

Baby Ojas
Child of Pitambar Khannal
Patient Hospitalised at
Sir Ganga Ram Hospital, Old Rajinder Nagar, New Delhi , Delhi

Story


Every parent dreams of watching their baby crawl around the house, laugh freely, and grow stronger with each passing day. But for my 9-month-old son, Ojas, every single day feels like a battle we never imagined. He has been diagnosed with ARPC1B Deficiency, a rare genetic immunodeficiency disorder that has made even the smallest infection dangerous for him. After returning from Delhi in March, the doctors told us that we must wait until he turns one year old before they can perform the Bone Marrow Transplant (BMT) that could save his life. Until then, our world revolves around hospital visits, monthly IVIG injections, regular medicines, and protecting him from infections. In just the last three months, he has been hospitalised twice. At home, we keep him in strict isolation because something as ordinary as a common cold could become life-threatening for him.


As his father, it breaks my heart to see my son spend his infancy surrounded by medicines instead of toys. The doctors have explained that the Bone Marrow Transplant is his only permanent treatment, but it is a long, risky, and extremely expensive procedure. Every passing month is filled with fear as we wait for him to become eligible for the transplant while doing everything possible to keep him safe.


Please save my baby’s life!

I don't dream of anything extraordinary; I only wish to see Ojas recover, build a healthy immune system, and live the childhood every child deserves. I want to see him play without fear, go to school, make friends, and grow up without hospitals becoming a part of his everyday life. That simple dream is what keeps us holding on.


The cost of her life-saving treatment and medications has reached lakhs. My family and I have spent all our financial resources to save our baby’s life, but it's not enough; we need more funds to continue the life-saving treatment.


I am not asking for anything extraordinary; I simply want my baby to live. Time is running out, and I humbly ask for your support to help my baby get this life-saving treatment and give him a chance at life. Your donation will play a vital role in saving my baby’s life. Donate now!


Ways of making a difference…

DONATE: Click on the donate now button to contribute to my baby’s treatment.

SHARE: Share the story so it can reach out to more people and raise funds for his healthier future.


हर माता-पिता का सपना होता है कि वे अपने बच्चे को घर में घुटनों के बल चलते, खुलकर हंसते और हर दिन मज़बूत होते हुए देखें। लेकिन मेरे 9 महीने के बेटे, ओजस के लिए, हर दिन एक ऐसी लड़ाई जैसा है जिसकी हमने कभी कल्पना भी नहीं की थी। उसे ARPC1B डेफिशिएंसी है, जो एक दुर्लभ जेनेटिक इम्यूनोडेफिशिएंसी डिसऑर्डर है। इस बीमारी की वजह से उसके लिए मामूली संक्रमण (इन्फेक्शन) भी खतरनाक हो सकता है। मार्च में दिल्ली से लौटने के बाद, डॉक्टरों ने हमें बताया कि बोन मैरो ट्रांसप्लांट (BMT) करने के लिए हमें उसके एक साल का होने का इंतज़ार करना होगा, क्योंकि यही उसकी जान बचा सकता है। तब तक, हमारी दुनिया अस्पताल के चक्कर लगाने, हर महीने IVIG इंजेक्शन लगवाने, नियमित दवाइयां देने और उसे संक्रमण से बचाने के इर्द-गिर्द घूमती है। पिछले तीन महीनों में ही उसे दो बार अस्पताल में भर्ती कराना पड़ा है। घर पर हम उसे पूरी तरह अलग-थलग (आइसोलेशन में) रखते हैं क्योंकि सर्दी-जुकाम जैसी मामूली बीमारी भी उसके लिए जानलेवा हो सकती है।

एक पिता के तौर पर, यह देखकर मेरा दिल टूट जाता है कि मेरा बेटा अपने बचपन के शुरुआती दिन खिलौनों के बजाय दवाइयों के बीच बिता रहा है। डॉक्टरों ने बताया है कि बोन मैरो ट्रांसप्लांट ही उसका एकमात्र पक्का इलाज है, लेकिन यह एक लंबी, जोखिम भरी और बहुत महंगी प्रक्रिया है। हर गुज़रता महीना डर ​​से भरा होता है क्योंकि हम उसके ट्रांसप्लांट के लिए योग्य होने का इंतज़ार कर रहे हैं और साथ ही उसे सुरक्षित रखने की हर मुमकिन कोशिश कर रहे हैं।


कृपया मेरे बच्चे की जान बचाएं!

मैं कोई बहुत बड़ी चीज़ नहीं चाहता; मैं बस ओजस को ठीक होते, एक मज़बूत इम्यून सिस्टम बनाते और वह बचपन जीते हुए देखना चाहता हूँ जिसका हर बच्चा हकदार है। मैं चाहता हूँ कि वह बिना डरे खेले, स्कूल जाए, दोस्त बनाए और बिना अस्पतालों के चक्कर लगाए बड़ा हो। यही एक साधारण सा सपना हमें हिम्मत देता है।

उसके जीवनरक्षक इलाज और दवाइयों का खर्च लाखों में पहुँच गया है। मैंने और मेरे परिवार ने अपने बच्चे की जान बचाने के लिए अपनी सारी जमा-पूंजी खर्च कर दी है, लेकिन यह काफी नहीं है; इलाज जारी रखने के लिए हमें और पैसों की ज़रूरत है।


मैं कोई असाधारण चीज़ नहीं मांग रहा हूँ; मैं बस चाहता हूँ कि मेरा बच्चा जीवित रहे। समय तेज़ी से बीत रहा है, और मैं आपसे विनम्रतापूर्वक अनुरोध करता हूँ कि मेरे बच्चे को यह जीवन रक्षक इलाज दिलाने और उसे जीने का मौका देने में मदद करें। आपका दान मेरे बच्चे की जान बचाने में बहुत अहम भूमिका निभाएगा। अभी दान करें! बदलाव लाने के तरीके…

डोनेट करें: मेरे बच्चे के इलाज में मदद करने के लिए 'अभी डोनेट करें' (Donate Now) बटन पर क्लिक करें।

शेयर करें: इस कहानी को शेयर करें ताकि यह ज़्यादा से ज़्यादा लोगों तक पहुँच सके और उसके बेहतर भविष्य के लिए फ़ंड जुटाने में मदद मिल सके।

The goal amount of the campaign may be higher than the attached estimates to address and aid the post-hospitalization expenses/contingencies including but not limited to prolonged medication, diagnostics, rehabilitation therapies, and follow-up doctor visits/consultations which vary from disease to disease.
NO INFLUENCE DECLARATION
Impact Guru does not influence / control the decision of the campaigner / patient with respect to choice of hospital / doctor / healthcare treatment or the cost / estimate of any such treatment. Such decision is in entirety of campaigner / patient / beneficiary and / or their family members without any interference and / or say of Impact Guru. Impact Guru is absolved of any liability in respect thereof.
LANGUAGE OF STORY/STATEMENT DECLARATION
The language, story, facts mentioned on this fundraising page is in entirety statements / opinions / thoughts shared by the campaigner / beneficiary or persons authorised on their behalf and shall not be construed as statement / thoughts / opinions of or on behalf of Impact Guru.
TREATMENT COST ESTIMATES
Impact Guru has no control over the cost estimates provided by hospitals / clinics / pharmaceutical companies etc. The cost estimates vary depending on the city and / or hospital where the patient is under treatment, professional fees of the treating doctors, drugs / medicines / therapies chosen for treatment by patient or patient’s family at their own discretion including but not limited to unique medical conditions / circumstances pertaining to each patient.
UTILIZATION OF FUNDS
In the rare scenario of surplus funds remaining within the fundraising campaign due to any of the following circumstances: i) Completion of the Patient's treatment; ii) Receipt of requisite funding for the Patient from alternative sources; iii) Eligibility of the Patient for free treatment under any scheme or the receipt of free treatment by other means; iv) Demise of the Patient; v) Fulfilment of the fundraising campaign's objectives; vi) Termination of the fundraising campaign for any reason; vii) Reduction in the cost of the treatment,
Impact Guru shall have the discretion to use such surplus funds to allocate to i) other patients on Impact Guru for their life-saving treatment and/or donors to provide health benefits with object to maximize social impact; and/or ii) donors of the fundraising campaign at the sole discretion of Impact Guru may be offered the option to claim a pro-rata refund of surplus funds.
PATIENT DEATH UPDATE
Upon the death of the patient, the Campaigner / close relative / POC on behalf of the patient shall be duty bound to inform Impact Guru immediately within two (2) hours of such occurrence and turn off the donations tab (through the internal access granted) on the campaign on Impact Guru Platform in order to stop fundraising on the campaign. In the event Campaigner or authorised/designated POC on behalf of the patient fails to do so and campaign continues raising funds due to such non-information/non action, the Campaigner or authorised/designated POC on behalf of the patient shall be personally liable any consequences thereof; further, Impact Guru shall be disclaimed of all the liabilities occurring with respect to such post death fundraising and the such liability in entirety shall accrue on Campaigner or authorised/designated POC on behalf of the patient. In the event of death of the patient, Impact Guru’s Patient Death Policy at Terms Of Use shall apply.
Documents

Comment



Fundraisers for This Cause




Touch more lives with your Kindness !

playstore
X

Access and manage fundraisers at your fingertips!

Get important fundraising tips, a personalized dashboard and real-time updates with ImpactGuru’s new and improved crowdfunding app.

qrcode

Scan the QR code to download the app

mobile-out-image
mobile-inside-image