#1 (05 Jul, 2025) - From Impactguru Dear Donors, This is an update regarding the funds raised so far. Part of the funds available are being transferred to the Pharmacy account to cover the costs of the patient's medical treatment. We thank you for the continuous support on this campaign.
#2 (01 Jul, 2025) - From Impactguru Dear Donors, This is an update regarding the funds raised so far. Part of the funds available are being transferred to the Pharmacy account to cover the costs of the patient's medical treatment. We thank you for the continuous support on this campaign.
#3 (05 Apr, 2025) - From Impactguru Dear Donors, This is an update regarding the funds raised so far. Part of the funds available are being transferred to the personal account to cover the costs incurred for the patient's medical treatment. We thank you for the continuous support on this campaign.
#4 (18 Mar, 2025) - From Vineet Chaudhary Dear Donors,
Vriddhi is currently at home, receiving continuous care and treatment. Although she is taking oral medication Risdiplam to maintain muscle health, like most children with SMA, she faces breathing difficulties. She thus requires CPAP support that keeps her breathing airways clear while she sleeps. Vriddhi urgently needs funds for Zolgensma, a crucial gene treatment that can help her conquer failing muscles caused by SMA.
Your support can make a life-changing difference for Vriddhi. Please consider contributing and sharing her story to help her receive Zolgensma at the earliest.
#5 (28 Feb, 2025) - From Vineet Chaudhary Dear Donors,
--- 𝗙𝘂𝗻𝗱𝗿𝗮𝗶𝘀𝗲𝗿 𝗨𝗽𝗱𝗮𝘁𝗲 ---
We have r𝗮𝗶𝘀𝗲𝗱 𝗮𝗿𝗼𝘂𝗻𝗱 4 crores through various platforms, but we still 𝗻𝗲𝗲𝗱 𝟱 crores to reach our goal. Thank you to everyone for your generous contributions and we remain hopeful for continued assistance as we aim to achieve our goal by 𝗺𝗶𝗱-𝗠𝗮𝗿𝗰𝗵.
--- 𝗚𝗲𝗻𝗲 𝗧𝗵𝗲𝗿𝗮𝗽𝘆 𝗣𝗿𝗼𝗰𝗲𝘀𝘀 ---
- We are working with Novartis and Rainbow Hospital to finalize a tri-party agreement for the pharmaceutical purchase.
- We have submitted the Import License form online and anticipate receiving the permit shortly. Once we have the permit, we will apply for customs exemption.
--- 𝗣𝗿𝗮𝗷𝗮𝘃𝗮𝗻𝗶 ---
We visited Prajavani in Hyderabad, where we met Divya Devarajan Ma'am who explored how the government can support our cause. Prajavani is a unique public-private partnership program, that allows citizens to interact with the Government, and we are optimistic about positive outcomes from this visit.
--- 𝗦𝘂𝗽𝗽𝗼𝗿𝘁 𝗳𝗿𝗼𝗺 Telangana Social Impact Group (T-SIG) 𝗮𝗻𝗱 Sonu Sood ---
Divya Ma'am also introduced us to Archana Suresh Ma'am, who is helping to amplify our message. She connected us with Mr. Sonu Sood, the actor and philanthropist, who graciously agreed to create a video to raise awareness about SMA. We extend our heartfelt thanks to Archana Ma'am and Mr. Sood for their generous support.
--- 𝗖𝗦𝗥 𝗮𝗻𝗱 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻𝘀 ---
We are reaching out to various foundations and CSR initiatives for assistance. While we have received positive confirmations from some, we are still awaiting concrete support. We hope to secure backing from additional foundations to accelerate our fundraising efforts.
Thank you once again for your love and support!
Regards,
Vineet.
#6 (07 Feb, 2025) - From Vineet Chaudhary Dear Supporters,
We hope this message finds you well. We wanted to take a moment to update you on Vriddhi's progress in her battle against SMA Type 1 and share some recent developments.
Recent Medical Updates
As advised during the SMA clinic, we conducted a sleep study for Vriddhi on January 25th. Following the study, the pulmonologist diagnosed her with hypoapnea and recommended a CPAP machine for nighttime use. We have since acquired the CPAP machine on rental and also obtained a Pixi mask.
However, we are facing some challenges. Currently, Vriddhi is having difficulty adjusting to the mask, and finding a perfect fit for her has proven to be quite difficult. We are actively evaluating all available options and masks suitable for 7-month-old children, but unfortunately, we have not yet found a perfect solution.
Funding Update
We want to extend our heartfelt gratitude for your continued support and contributions. Thanks to your generosity, we have reached closer to INR 2.1 crores across multiple platforms. However, we have noticed a decline in funding recently. We are committed to exploring various avenues and strategies to reach our ultimate goal of INR 9 crores, and we appreciate any help you can provide in spreading the word about our campaign.
Thank You
Your support means the world to us and has made a significant difference in Vriddhi's life. We are incredibly grateful for your kindness and generosity during this challenging time.
Thank you for standing by us on this journey. We will keep you updated on Vriddhi's progress and any new developments.
With gratitude,
Vinti and Vineet
#7 (24 Jan, 2025) - From Vineet Chaudhary Dear Donors,
We recently visited the SMA Clinic at Rainbow Hospital in Secunderabad on 23rd Jan, where we had the opportunity to consult with a dedicated team of specialists:
Neurologist: Provided an overall diagnosis and discussed the details of SMA medication.
Pulmonologist: Conducted a thorough examination of her lungs and existing issues.
Dietician: Suggested a tailored diet and feeding pattern to support her growth.
Orthopaedic Specialist: Assessed her spine and bone structure for any concerns.
Physiotherapist: Evaluated her motor movements and head control, recommending exercises for our home physiotherapy sessions.
During our visit, the neurologist prescribed Zolgensma , a gene therapy(9 crore therapy) that offers hope for our daughter’s condition. We are in the process of filling out the necessary forms to access this treatment, which requires extensive medical testing. We anticipate receiving the official invoice for the therapy costs once the Novartis team reviews our application, which should take about a week.
In the meantime, we have started her on Risdiplam using our savings. The cost for this medication is significant, ranging from Rs 30-40 lakhs per year, as it is weight-specific.
